FORE FOR 4H
DRIVING FOR A CURE
Raising money and awareness to battle 4H Leukodystrophy
HELPING FAMILIES THAT ARE AFFECTED BY 4H LEUKODYSTROPHY
Welcome to the Fore For 4H website! Our objective is to raise money for research to help families that are affected by 4H Syndrome - an extremely rare form of Leukodystrophy. It is important that we raise money and awareness because this disease is extremely rare. There are still less than 300 cases diagnosed worldwide. It is very difficult to receive federal grants and receive backing from large corporations when there are not enough patients. We need to do this on our own - until we receive the recognition necessary to make a difference.
As we start a brand new year and draw to a close what is undoubtedly one of the worst years ever – I am reminded every single day to never take anything for granted. Last January we were preparing for a banner year with our 6th annual Fore For 4H Golf Outing - but it was not to be. With COVID everywhere and Jilly's health issues this year - our fundraising efforts were weak at best. Many of you reached out to offer suggestions to raise money which were much appreciated - but the timing never quite worked out. Despite all of these shortcomings we were still able to collect $5,000 over the course of 2020. An unbelievable feat if you ask me. Obviously we thank ALL of you who generously donated this year.
The Yaya Foundation for 4H Leukodystrophy whom we support has made great strides in 2020 as well despite the sad conditions. We have formed a collaborative network of families, researchers and physicians – and engaged in a very productive Zoom conference – the first of its kind. Their fundraising efforts and commitment to treating and curing this disease is outstanding. We look forward to working together with The Yaya Foundation in 2021.
SAVE THE DATE! We have scheduled the Fore For 4H Golf Outing 2021 for Saturday, August 7th. Our aim is to come back stronger than ever this year. I am hopeful we can fill the course once again with 144 golfers - and collect as many donations as possible!! Who knows what things will be like in 8 months - but if we're still wearing masks and social distancing we can still make this happen!
We're looking forward to seeing you all again!! Please stay connected with us on Facebook and our websites: https://www.forefor4h.org/ https://yayafoundation4hl.org/ and on Twitter: @h_for4 and @yaya4HL
Stay Safe!! Be Excellent To Each Other!!
Alone We Can Do So Little; Together We Can Do So Much.
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